National Platform for the Rights of the Disabled

India has an estimated one lakh patients with thalassaemia, a genetic disorder in which the blood cells cannot make sufficient amounts of the iron-containing pigment haeomoglobin. Credit: ssoosay/Flickr, CC BY 2.0

India’s Ignoring Its Rare Disorders and Their Orphan Drugs Led to the Thalassaemia Crisis

T.V. Padma 22/09/2016

Neither national nor state health policies make any reference...