rare genetic disorders

Delhi high court. Credit: PTI

Delhi High Court Urges State Governments to Step up on Handling Rare Diseases

India has an estimated one lakh patients with thalassaemia, a genetic disorder in which the blood cells cannot make sufficient amounts of the iron-containing pigment haeomoglobin. Credit: ssoosay/Flickr, CC BY 2.0

India’s Ignoring Its Rare Disorders and Their Orphan Drugs Led to the Thalassaemia Crisis